Ethics, Regulations and Patient Rights in Medical Research: The Trans Research Case at Oslo University Hospital (OUS)

Welcome to a seminar on research ethics in healthcare, based on a recently reviewed case by the Research Integrity Committee concerning research involving transgender children and adolescents.

In this case, researchers were found guilty of conducting illegal and unethical research on 1,700 underage patients, involving serious and negligent breaches of research ethics (see, for example, here or case no. 16 here, in Norwegian, or here in English).

The seminar will shed light on what took place and how it was uncovered. We will also review relevant regulations, the background and responsibilities in the case, issues of consent, and ethical standards in health research.

The event is open to everyone: professionals, affected individuals, students, family members, and anyone interested. The presentations will use clear and accessible language, with no need for prior legal or technical knowledge. Relevant legislation and ethical frameworks will be reviewed at an overarching and easy-to-understand level.

Tid og sted: –, Eilert Sundts hus, A-blokka: Auditorium 3, Blindern
Bildet kan inneholde: stetoskop, medisinsk utstyr, medisinsk.

Topics of the Day:

  • Laws and regulations.
  • The research case involving breaches of research ethics at Oslo University Hospital (OUS).
  • Current status of the case and the latest findings.
  • Patient rights.
  • Research and medical ethics.

Location

Eilert Sundts hus, A-blokka: Auditorium 3, Blindern.

Registration

Registration (for both in-person and online participation) is available via this form:

https://nettskjema.no/a/forskningsetikksaken

Program

12.00-12.55Mingling
Coffee and light pastries will be served.
12.55-13.45

The ethics case at Oslo University Hospital: Illegal research on transgender people

Anine Hartmann (Board Member, Patient Organization for Gender Incongruence) and David R. Banos (Associate Professor, University of Oslo)

13.45-14.00Break
14.00-14.45Feedback from the perspective of medical ethics
Rosemarie de La Cruz Bernabe (Professor at the Centre for Medical Ethics, University of Oslo) and Søren Holm (Professor of Bioethics at the University of Manchester and Adjunct Professor Professor at the Centre for Medical Ethics, University of Oslo)
14.45-15.00Closing remarks

 

 

Arrangør

Rosemarie de La Cruz Bernabe, David R. Banos og Anine Hartmann
Publisert 4. nov. 2025 15:13 - Sist endret 2. des. 2025 08:56
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